I inject vitamins and a drug into the bag that is pre-prepared by a nutritionist. We hook her up to a pump at 9 pm, she gets nourished while she sleeps, and unhooks at 9 am. It goes directly into her port that is in her chest (where she got her chemo). She can put the bag into a back pack if she doesn't want to push the pole. We are both getting very attached to the sound of the pump. It's like a heartbeat - every two seconds - and has become a comforting sound during the night!
A shout-out to Infusion Solutions. Their business is allowing people to receive IV meds and nutrition at home. They prepare the solution, in consultation with a physician, and deliver 5 days worth of TPN and supplies at a time. We are so glad we have an extra refrig in the garage to hold the bags! A nurse comes out once a week to change her dressing.
She will stay on this until it is no longer contributing to her quality of life. Unfortunately, she is getting increasingly more weak and tired and we are both afraid that this might be irreversible. We shall see.
The good news is that except for frequent vomiting and reflux, she is in NO pain and is on no pain meds.
13 comments:
Hi, you two! Thank you for continuing to keep us posted. I have been thinking of you both, nearly every day, and sending my love. I would love to drive up from Seattle to see you, but realize your energy is probably not so great (Joann) and you are busy with all kinds of stuff (Janet) so I'll send love and virtual hugs this way.
Ruth
Joann and Janet...what love, what love. You two are amazing and model my personal mantra: Truth = Beauty = Love = God! I send my healing prayers without ceasing...I feel the angels presence around you. Peace be with you, now and always. Love, Donna Gustin
Hi Joann and Janet, I just sent a blurb about knitting to Kathryn at church so you are much on my mind this minute. How I wish you could be there, Joann. I think of you both all the time - as so many others have noted you are an inspiration and model for those of us follow in your footsteps. Love, Sarah J.
Hey brave ladies. Your blog both enriches me and makes me tearful. On a personal note, when I was in Illinois I learned that a nephew engineer has been working on a neonatal infusion system. China is involved somehow. Not sure if they're buildng it or being the test babies. I wish I could do more than just chat. Hang in there. Joan Roley
I think of both of you every day. Sending lots of love!
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