One of the hardest parts of this dying thing is facing increasing losses, almost on a daily basis. Loss of vitality, well-being, being able to eat, being able to drive, etc. In the last two days, Joanne has had two serious falls. One was from the one step on our back deck - she fell backwards and hit her head and hurt her back.
Yesterday, she was walking from the bedroom into our master bathroom and fell forwards, hitting her head. I was in the bathroom at the time and the suddenness and force of the fall were very scary.
So, new rules. No more walking off the deck. But what next? What if she falls when no one is here and she can't get back up? The path we are on feels like it is getting bumpier. We will soon need to have folks here when I have work outside the home.
Joanne's sister, Eileen, was here for one week from New York. It was great having her here - she and Joanne are very close and she was a delightful guest.
Last night Joanne and I went to the benefit concert at Boundary Bay for Marriage Equality. It was touch and go about her being able to go, but all went well. Her wheelchair was comfortable and she was able to see and enjoy many friends and hear great music. It's so exciting to think that in the near future everyone in Washington State may be able to legally marry the person they love.
Janet & Joanne
Sunday, September 9, 2012
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8 comments:
I know there are lots of us who would love the chance to spend time with Joanne when you need to be out! You will probably need to make a dance card. This working business makes it a challenge for me during the daytime but I am good for a sporadic hour or two during the day and can be on call in the evening.
It was good to see you both at the concert even though I spilled water on you.
Comment deleted because it didn't say my name.
I would love to be on the dance card. You are never far from my thoughts and always in my heart.
Shannon Wallace
Here's a website that Izzy's school uses to coordinate volunteers. They have a free service that allows people to sign up for specific time slots and projects. This would be one way to allow the wide circle of people who love you both to help out.
http://www.volunteerspot.com/index
I would be happy to figure out how to set it up if it feels like something that would be a good fit and helpful to you.
xo
Laurel 319-9885
I would be happy to help in anyway I could. And there are many, many people at church who love you both and would be delighted to spend time with Joanne. I realize that the time might be in quiet or just holding a hand. Do know that we would be honored to share our love of both of you in any supportive way. Mary
I'm available many evenings from 5:00 on and would be delighted to spend time with Joann so you can go out, Janet. Know I'm always here and you both are always in my heart. ~Nancy Kennell
Janet, I am so appreciative that you are keeping this blog. I feel far away, and it is so good to know a bit more of how things are day to day. I continue to think of you both, and hold you in my heart. And admire your courage and grace, both of you, for how you are living with all these challenges.
I love the online dance card idea. http://www.signupgenius.com/ is another option.
Hard to express how much loving I hold for you. Ruth
I love you both so much, and am in great appreciation that you are sharing your journey with us. I know this is a healing journey, even though it remains a mystery. Your faith is an inspiration, and I am holding you in my heart and prayers. Love, Terryll
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